Tribute Wall
Friday
26
January
Memorial Visitation at Funeral Home
4:00 pm - 8:00 pm
Friday, January 26, 2024
Fredrick J. Chapey & Sons Funeral Home, Inc.
20 Hicksville Road
Bethpage, New York, United States
Saturday
27
January
Memorial Visitation at Funeral Home
12:00 pm - 3:00 pm
Saturday, January 27, 2024
Fredrick J. Chapey & Sons Funeral Home, Inc.
20 Hicksville Road
Bethpage, New York, United States
Obituary
Aksel Eugene Ahn was born on June 7, 2018 at LIJ, Queens NY to Monica Yoo and Min (Peter) Ahn. Aksel passed away at home on January 22, 2024. Aksel was born with a gene mutation, KCNT1, which caused him to have a rare and severe epilepsy disorder. His condition was known as Malignant Migrating Partial Seizures of Infancy (MMPSI). Aksel spent most of his first two years with hospital visits and long hospital stays. He was a true warrior who battled every day since infancy. Aksel had seizures every day despite his numerous medications around the clock. Due to the severity of the seizures, he was medically fragile. He was non-verbal, unable to move on his own, had heart and respiratory issues, immune compromised, weak bones, etc. He fought hard to his very last day.
Despite his challenges and obstacles, Aksel enjoyed his bath time and time in the water. He loved singing and dancing to music. He loved going outside and going on trips. Aksel enjoyed his time with his parents and grandparents.
Aksel is finally free from all the medical devices and hospital visits. No more labs or running tests. Most importantly he is no longer restrained physically or verbally. Aksel is finally able to talk, scream, sit, jump, walk and run as a free spirit.
We would like to thank all his specialists, therapists, palliative and hospice team throughout all the years. Thank you for Make-A-Wish to make his first real vacation possible.
We would also like to thank Chapey & Sons Funeral Home for donating their time and services for Aksel.
In honor of Aksel, please consider a donation to the KCNT1 Foundation to continue his legacy and help many more warriors like Aksel.
Rest in Peace.
**Request From Family**
If you would like to bring a story or poem that can be read at Aksel's Memorial visitation, please feel free to do so.
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Salesha Baldeo lit a candle
Wednesday, January 31, 2024
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Sending my sincerest condolences to your family. It was an honor to be able to meet Aksel and provide care for him in the short time we did. He is now free to run, jump and play as much as his little heart desires.
Love Salesha
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Prof. Kathleen Barker lit a candle
Saturday, January 27, 2024
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Dear Peter and Monica,
Please accept my heartfelt condolences on the loss of your son, Aksel. I know words seem meaningless after the loss of Askel but please know that me and many others at MEC are thinking of you at this time.
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Henlee lit a candle
Saturday, January 27, 2024
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Monica & Peter, so sorry for your loss. We will miss Aksel as well. He was the cutest Star Wars fan. He's one with the Force now, where he will live gloriously and forever. All our thoughts and condolences.
With love,
H & K
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Kristine lit a candle
Friday, January 26, 2024
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My heart goes out to Aksel's parents in this time of grief/loss. Aksel will be missed. It's evident how much Aksel was loved and cared for. I am honored to have had the privilege to assist in art-making with Aksel and his family.
-Kristine M., Former Expressive Therapist
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Dawn Guariglia posted a symbolic gesture
Thursday, January 25, 2024
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My thoughts and prayers are with you Monica and Peter as well as your parents. I am so glad I had the chance to be a part of Aksel’s life and will keep him in my heart forever ♥️ Fly high Aksel
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Anderson Ip lit a candle
Thursday, January 25, 2024
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Sending your family lots of love and condolences from a KCNT1 angel's dad. Wishing you peace and my deepest sympathies. Please reach out if you'd like to talk.
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Tammy Williams posted a symbolic gesture
Wednesday, January 24, 2024
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So sorry for your loss. Sending love and prayers to you and your family.
The Williams Family
Parents of a KCNT1 Warrior
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Professor S. James lit a candle
Wednesday, January 24, 2024
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daria posted a condolence
Wednesday, January 24, 2024
I had the pleasure of working with Aksel and his loving family. He will hold a special place in my heart always. My condolences to all who knew and loved him.
love,
Daria
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Owen Billman posted a condolence
Wednesday, January 24, 2024
I am so very sorry for your loss. Wishing you all the best during this time.
- Owen Billman, Board Chair, KCNT1 Epilepsy Foundation
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kevin weaver lit a candle
Wednesday, January 24, 2024
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Sending lots of love your way from a KCNT1 Angel’s grandpa. Kevin, Show Low, AZ.
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Charlene lit a candle
Wednesday, January 24, 2024
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I had the pleasure of working with Aksel and his family. My deepest condolences and prayers are with you. May his memory be a blessing and may you find peace.
Love,
Charlene
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Heather Patterson lit a candle
Wednesday, January 24, 2024
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You sweet Aksel will be missed Dearly. I hope you find peace during this difficult time.
Love the Patterson-Chadwick Family
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Malka posted a condolence
Tuesday, January 23, 2024
I was honored to spend time with Aksel and get to know him. He brightened my days and will always hold a special place in my heart. He will be sorely missed.
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The family of Aksel Eugene Ahn uploaded a photo
Tuesday, January 23, 2024
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Please wait
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Sarah Drislane lit a candle
Tuesday, January 23, 2024
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On behalf of the KCNT1 Epilepsy Foundation and the community of families whose children are affected by KCNT1-related epilepsy, we send our deepest condolences during this difficult time. We thank Monica and Peter for their generosity in supporting the Foundation mission to fund research for new treatments. Their heartfelt gesture demonstrates their love and compassion, even amidst their grief. Monica and Peter, in honor of Aksel, we pledge to continue our mission with even greater determination to fight for the children and their families. To learn more about KCNT1-related conditions, visit https://kcnt1epilepsy.org
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Claire posted a condolence
Tuesday, January 23, 2024
Monica, he will be in peace watching over you.
I am at a loss of words. I am sending hugs and prayers for you and him. Iam sure no words can comfort and ease your pain at the moment. Please remember there's a lot of us staying by you quietly if you need anything.
Love , Claire and Vicky
West Islip
1225 Montauk Hwy
West Islip, NY 11795
(631) 661-5644
East Islip
200 East Main St
East Islip, NY 11730
(631) 581-5600
Bethpage
20 Hicksville Road
Bethpage, NY 11714
(516) 731-5600